When Grace was one and a half, we learned that she has a rare disorder called Angelman syndrome (AS). The diagnosis we received from the doctor was shocking, bleak and, fortunately, inaccurate. Because of recent advancements in the understanding of AS, we now know that treatments for Angelman syndrome are not only possible, they are probable. In fact, scientists believe that AS has the greatest potential for being cured when compared to other pediatric neurological disorders.
We created this page because we're inspired by the breakthroughs being made by FAST, and we want to do our part by raising money to fund clinical trials for AS. FAST researchers know exactly what causes AS and have already cured it in the laboratory. Today, five gene therapy strategies are in development. Your donation to our page helps fund all of them. Please help Grace walk, talk and live seizure free by supporting this critical research. Click the “Give Now” button and donate whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater the foundation's impact, so please also spread the word by sharing our page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to help fund this groundbreaking research and spread the word. Thank you in advance for your generosity.
John & Bethany