Family and Friends,
Wes was diagnosed with Angelman Syndrome (AS) in Nov 2017. Having AS makes things like walking, balance, communicating, eating etc a lot harder to do than typical individuals. 90% of AS individuals have debilitating seizures that are hard to manage with medication. Wes deserves BETTER!
With AS and the complex struggles AS poses, its shocking that it's such a simple disorder involving one key gene, UBE3A. FAST scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for AS to clinical trial within two years-but we need your help!
FAST has brought together a multi-disciplinary team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change lives for those with AS, and potentially related disorders like Autism and Alzheimer's disease.
What does a cure mean to our family? A cure to us would mean Wes being able to communicate his basic needs through speech, walk with better coordination, be toilet trained, dress himself, and be seizure free. Wes DESERVES this.
We thank you in advance for your generosity. It's our Kraker promise, that when this cure allows our boy to talk, that he will thank each and every one of you in person himself. We love you all and are so appreciative of your support!