Thiago was born on August 26, 2016. After struggling with recurrent pregnancy loss for two years his arrival was the sweetest victory we ever had. He immediately filled our hearts with immeasurable love, hopes and dreams. He was a "high need" baby during his first months, but his beautiful eyes and frequent giggles were all the fuel we needed to keep going. It is actually a true blessing to witness how easily Thiago brightens up someone's day with his smile and joyous personality.
Individuals with AS struggle with motor coordination and balance. They are non-verbal, have learning challenges, and most of them also suffer diffcult to control seizures.
Not surprisingly, his AS diagnosis hit us really hard. It felt like loosing our perfect and beautiful baby in the worst possible way. Sadness, anger and fear soon filled us up.
Then, we learned about FAST and its commitment to cure AS. We started to heal and to cautiously dream back again. We are certain that a better future for Thiago is and will be possible.
We've created this page because we are inspired by the breakthroughs being made by FAST, and we want to do our part by raising money to fund clinical trials for Angelman syndrome (AS). FAST researchers know exactly what causes AS and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome. Your donation to our page helps fund all of them. Please help us support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater their impact. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity.