Leo IV was born on June 20, 2016 and he's been stealing hearts ever since! He grew from a beautiful, happy baby into a loving, fun, super-sweet boy in the blink of an eye. He is our everything.
On May 21, 2018, just about a month before his 2nd birthday, Leo was diagnosed with Angelman Syndrome. While Leo is making great progress and we will never place limitations on him, nothing prepares you for the thoughts that run through your mind with this particular diagnosis:
"There is a chance my child will never walk."
"We're never going to hear him say 'mama' and 'dada'."
"Is he going to develop seizures?"
"He will never be able to live on his own - what will happen to him when we're gone?"
We are positive people and our family - our little clan - is going to have an amazing life together. But those worries and little voices in our heads will always be there. And though each case of Angelman Syndrome is different, our son is going to face a lifetime of challenges that others will not.
We are Leo's biggest fans, and we will fight for him in every way possible. FAST researchers know exactly what causes Angelman Syndrome and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman Syndrome and funding is necessary to bring these therapies to human clinical trials. A donation to The Leo Fan Club will not only make you a member of the coolest fan club in the world, it will help to fund these groundbreaking efforts. Angelman Syndrome is a rare disorder, so we truly rely on the support of friends and family members to spread the word and help us fight for a cure! We love Leo just the way he is (let's be honest, he's AWESOME) but if there were ever a way to make things like walking, talking and learning just a little bit easier - we want that for him. Thank you for reading our story, and for supporting our family and others like us! <3