We waited two years for our little miracles to arrive. Zachary and Parker surprised us early, nearly 2 months early.... and were ready to fight. They spent about 75 days in the NICU before they could come home to us. We knew there would be some hurdles to overcome from there- making sure they didn't get exposed too much, therapies to make sure their prematurity didn't affect their development, and just trying to survive having TWINS! We noticed Zachary was not developing at the same rate as Parker and became concerned that he was not babbling. A few months later and lots of testing, we had an answer: Angelman Syndrome. If you google Angelman Syndrome, it can be extremely scary. Words and phrases like seizures, nonverbal, low IQ, inability to walk start jumping off the page. But, we KNOW Z is a fighter. He's our Super Z. He's going to redefine Angelman Syndrome and KICK AS! We want a CURE for our baby and we know it is possible!
I've created this page because I'm inspired by the breakthroughs being made by FAST, and I want to do my part by raising money to fund clinical trials for Angelman syndrome (AS). FAST researchers know exactly what causes AS and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome. Your donation to my page helps fund all of them. Please help me support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater their impact, so please also spread the word by sharing my page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity.