Suzanne was born special. As her mother I knew just how special she was while no one else did. A mother just knows. We got the formal diagnosis in January that she has Angelman Syndrome. While I prayed daily I was wrong, my mama heart knew. Now we know and are adjuasting to our new normal. Suzanne may never talk with her voice until there is a cure. She may not walk for a very long time and will likely suffer from seizures. She will have significant developmental delays but it will never keep us from loving her with our whole hearts and we will never stop praying and working for a cure. There are 5 gene therapies currently in the works that could CURE or significantly help improve Suzanne’s life and all the other Angels. It could start happening as soon as 2019!!! But we need your help! We need to raise money to fund these therapies. Please consider donating to Suzanne’s team. Anything you can give will help. Suzanne is our Princess Warrior and we love her so much!!! Thank you for your support, love, prayers and donation.
Kendall, John, Clyde and Suzanne