Nathan was diagnosed with Angelman Syndrome at 28-months-old. He is currently six-years-old and just entered the first grade. July 2018 was a big month for Nathan, he celebrated being ONE-YEAR SEIZURE FREE and also started WALKING INDEPENDENTLY!!! He’s the most happy, loving, and determined little boy we’ve ever met!
Angelman Syndrome is a rare neurogenetic disorder that affects approximately one in 15,000 people. Symptoms include: balance issues, motor impairment and debilitating seizures. Some individuals never walk. Most do not speak. Despite its often devastating effects, AS is a simple disorder involving only one gene. The Foundation for Angelman Syndrome Therapeutics (FAST) scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for AS to clinical trial within two years, but we need your help!
FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with AS and potentially related disorders, like Autism and Alzheimer’s Disease. FAST is the largest non-governmental funder of AS research and the only organization with a detailed plan towards a cure.
Thank you in advance for your generosity, it means a lot!!
Andrew & Kaline Gillespie