This year i turn 50. I have everything in the world I could ask for except a cure for Angelman Syndrome.
JP was diagnosed in 2004 with Angelman Syndrome. We were told he would never walk, talk, have seizures. 13years later he’s done wonderfully. He does walk with assistance. His seizures are controlled to date with medication. But with every illness and every day that worry is still there that this may be the day that we lose seizure control. 13years latwr I’m still fighting for JP to have communication.
As I sit and think of turning 50 I worry who will be there for JP when I’m no longer here, will the system look after him, so many horror stories.
Please make my birthday wishes come true by helping us find a cure.
FAST researchers know exactly what causes AS and have already help me support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater their impact, so please also spread the word by sharing my page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity.