My sister’s loving and happy two year old was recently diagnosed with a very rare genetic disorder called Angelman Syndrome. I started this page because my adorable nephew and all others with Angelman need our help! A CURE FOR ANGELMAN SYNDROME IS NO LONGER A MATTER OF IF, BUT WHEN!
Angelman Syndrome is caused by a mutation to a single gene involved with regulating neurotransmitters in the brain. While Angelman symptoms are variable, individuals with Angelman are largely nonverbal, have difficulty walking, are prone to seizures, and have difficulty sleeping. They have the most positive, happy demeanor. Louis is the sweetest, most loving and happy little guy. My family is in love and adores him!
Our family has learned about FAST and has been inspired by the breakthroughs being made by FAST, a scientific organization that funds research aimed at the AS cure. This website helps them raise money to make a cure accessible to humans.
FAST’s scientists know exactly what causes Angelman syndrome. They have cured the symptoms of the disorder in mice using multiple strategies. FAST and the Angelman community are working together to bring life-changing treatments to people with Angelman syndrome so they can speak, walk, sleep and live seizure free. Your donation today get us closer to finding a cure.
Please help support this critical mission by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated immeasurably! Please feel free to share my page with your contacts. Angelman is a rare disorder, thus we rely on the support of friends and family members to fund this groundbreaking research.
I cannot thank you enough for your generosity. For those of you who personally know the Werners or Louis, you know that any amount of a donation would mean the world to them! Please help us show the Werner family (Todd, Karly, Margot, William, and sweet Louie) that they have all the love and support in the world!!! THANK YOU!!!