UPDATE: I am running my second half marathon!
I ran my first half marathon in April and it was such an amazing experience! I was able to run the entire race and it inspired me to keep going. I recently signed up to run in the KC Half Marathon on October 20, 2018. Training starts soon and I am so excited to be even faster and stronger than before! As before, I am running for a cure for Kacie and others like her with Angelman Syndrome. Let's do this!
In November of 2017, I signed up to run my first half marathon. As a chunky 44 year old, this is a huge endeavor for me. I wanted to do this for me and for my health, but I also wanted to run for a greater purpose than myself. What better reason than to raise money and awareness for Angelman Syndrome?
As you all know, Kacie was diagnosed with AS at 11 months old. Angelman Syndrome is a neurological disorder that affects motor function and the ability for Kacie to do just about anything independently. For this reason, she is completely dependent on others to meet her needs. However, anyone that has ever met Kacie knows that she is incredible! Her determination is inspiring and she is loved by so many. She never stops trying and has made so much progress in the last few years.
Recent research has resulted in treatments for Angelman Syndrome that could make a huge difference in the lives of Kacie and others like her. There is true hope that in the near future, a treatment for AS could allow Kacie to have increased motor abilities and to talk to us, giving her the opportunity to tell us everything she has been learning and thinking about over the years. We also have hope that she will someday be able to be more independent and have a much more meaningful life, a life that she chooses.
For these reasons and more, I am running the Rock the Parkway half marathon on April 14 in Kansas City. I am running for me, for Kacie, and for everyone with Angelman Syndrome. All money raised will go to FAST, a foundation whose purpose is to cure AS. Any amount helps and is greatly appreciated. Thanks for your support!