My Dearest Friends and Family,
On September 25, our beautiful Mary Lynn Causey, "M'Lynn", was diagnosed with Angelman Syndrome. The feeling was equal to being hit with a tone of bricks. Once we were able to regain composure, we did a lot of research and found so much hope through the Foundation for Angelman Syndrome Therapeutics (FAST). I've created this page because we're inspired by the breakthroughs being made by FAST, and we want to do our part by raising money to fund clinical trials for Angelman syndrome (AS).Clint and I want to do all we can to be M'Lynn's advocates and be able to give her the miracle of a CURE.
Individuals with Angelman Syndrome typically have balance issues, motor impairment, debilitating seizures, and are usually non-verbal. This does not mean she does not want to communicate though. Some patients never walk, but with all the obstacles they never stop smiling. Despite all the devastating effects, AS is a simple disorder involving only one gene.
FAST researchers know exactly what causes AS and have already cured it in the laboratory in a mouse. Today, five therapy strategies are in development to treat Angelman syndrome. Your donation to FAST helps fund all of them. Please help us give M'Lynn a miracle and support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated!
The more people that know about FAST, the greater their impact, so please also spread the word by sharing our page with your friends and family. FAST is the largest non-governmental funder of Angelman Syndrome research and the ONLY ORGANIZATION WITH A DETAILED PLAN TOWARD A CURE!! Please visit http://www.cureangelman.org and read up on the amazing work the FAST FIRE team of scientists are doing to make a CURE possible.
Since AS is a rare disorder, we truly rely on the support of friends and family members to help us fund this groundbreaking research. Thank you in advance for your generosity. Your love and support means the world to us.