Hey all, my name is Melissa a first time half-marathon runner!
I started my running adventure five months ago with the hope that I would find out the meaning of strength, determination and perseverance. But, I knew that there was a bigger reason to push towards my goals other than than personal accomplishment. That's where Tuck comes in.
Tuck has Angelman syndrome, which I had never heard of before meeting his incredibly strong mother 7 months ago. I unfortunately was among the majority who does not know about Angelman Syndrome and the true impact it has on superhero like Tuck and his family. Angelmans Syndrome is a neuro-genetic disorder which is often misdiagnosed as Autism or Cerebral Palsy. This rare syndrome manifests in seizures, developmental delays, lack of speech and walking/balance disorders. FAST researchers know exactly what causes Angelman Syndrome and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome. I am striving to lessen the gap between unawareness and improving knowledge. My goal is to help mothers like Chelsea hear her son tell her he loves her for the first time.
On october 21st i'll be running for Tuck, a kid with more heart, determination and strength than I have ever seen. Unstopped by roadblocks and a smile so contagious it can light a whole room. I will be running for Tuck who cannot. I will be running so that he can run along side of me one day. I am running for the other children with Angelmans syndrome and for a cure. I am running for Tucks army, join me and donate today.