Thank you for taking the time to visit Maddie's CAN Page. Maddie was born 3/16/14 and was diagnosed on 5/5/16. The doctor told us not to expect much from Maddie, that she would never talk, walk, learn or have any form of a “normal” life. I went directly to the internet and was devastated with what I found. There seemed to be no hope for children with Angelman Syndrome and certainly no cure. Over the next few weeks I continued to research Angelman syndrome and found Paula Evans. Paula’s daughter was diagnosed with Angelman Syndrome about 10 years ago. At the time she was also told that her daughter would never live a normal life. Paula was determined to help her daughter and began her fundraising efforts. Fast forward to today, she has created The Foundation for Angelman Syndrome Therapeutics (FAST). We are now on the breaking edge of a Cure.
Madelyn is now a 4 year old Angel who not only walks but can run, laugh, play, understand and much more. Although Madelyn does not have a voice she is a social butterfly. She is now learning how to communicate through sign language and soon will be using an IPad as a communication device. Madelyn has many friends in and out of school who don’t look at her as “different” but as just another play mate. A few of Madelyn’s favorite things are her baby dolls, pushing her carriages around the house, playing with her cousins and she loves to eat!
Although Madelyn is living her best life, she still has some setbacks. Without a cure, Madelyn will never be able to talk, has a high probability of life threatening seizures, will never be able to drive or do many things that typical children are able to do. All money raised through my CAN page goes 100% to FAST in the hopes to cure Maddie and all other Angels. FAST donates 100% to research.
If anyone would like to help raise money for Maddie’s Cure please contact me!
Dana, Paul and Maddie
Your donation today will help Madelyn be cured. All it takes is the click of a button.