Hi, my name is Luke and I was born with Angleman Syndrome. Because I have AS, some things are harder for me than other kids. It takes me a long time to learn skills that come naturally to others. Some things that are hard for me are learning to walk, balance, pointing, clapping, waving and eating. And just because I can not speak, does not mean I do not know how to communicate.
Even though Angelman Syndrome makes my mommy and daddy sad, it is a simple disorder involving only one gene. FAST (Foundation for Angleman Syndrome Therapeutics) scientists have already cured AS in the lab using several different approaches. FAST is committed to bringing life-changing treatments for Angelman syndrome to clinical trial within two years – but we need your help.
FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with Angelman syndrome like me and, potentially, related disorders like autism and Alzheimer’s disease. FAST is the largest non-governmental funder of Angelman syndrome research and the only organization with a detailed plan towards a cure. FAST has set a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched -- and the faster we will be able to start clinical trials. Every dollar counts!
The more people who know about FAST, the greater FAST’s impact, so please spread the word by sharing my page with your friends and family. Thank you in advance for your generosity, it means a lot!