When we received Cameron's AS (Angelman Syndrome) diagnosis, he was 3.5 years old & we were honestly relieved just to finally have an answer, to know that the prognosis was not as terrifying as some of the others he had been tested for. It was not a fatal disorder thank God, & people with AS typically have a normal life expectancy, but seizures & other complications from the disorder could be life threatening & in the 5 years we have been a part of the AS community, many angels have lost their lives. We learned from our doctors that there was no cure, that Cameron would require 24/7 lifelong care & could never live alone. We learned that his seizures could be difficult to control & that he would likely need to be on multiple medications & require multiple medical interventions to develop. Our doctors were kind & did not tell us what many other parents had to hear when they received the same diagnosis "your child will NEVER walk, NEVER talk, NEVER be able to go to a normal school or have a fulfilling life. Take him home & love him, nothing more you can do." Our doctors did give us a dated printout with facts about Angelman. I took it upon myself to do what every concerned mother does best- research! Through a very quick Google search i came across FAST's website & i called the number. I expected to reach a call center, thought maybe they'd send me some flyers or something, sign me up for a newsletter, i don't know. It was not a call center, it was Paula Evans herself that answered my call. That spoke volumes to me about this organization & how personal this cause is to every single board member. I learned how rare this disorder is & that it's a small but mighty community that welcomed us with open arms, advice & a listening ear. We learned about FAST, we learned that there is indeed hope for a cure & that because it's such a small community, we all need to do what we can to raise the funds needed to make it happen, for Cameron, & all others affected by Angelman Syndrome.