Welcome to our Cure Angelman NOW fundraising page for Grace! We are blessed every day with Grace's smiles and spunky personality but we pray every day for a cure for AS so that she can live to her full potential. Through what we have seen in the lab, we know that this is not only possible, but imminent. Please help us to raise awareness and funds for a cure for Grace and the hundreds of thousands of other individuals with AS!!
Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.
FAST is the largest non-governmental funding source for Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure. FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.
FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.
Click to donate and join us in raising funds for Cure Angelman NOW!