My brother's family recently discovered that their son Louis has Angelman Syndrome. This little guy, my nephew, means the world to us and he needs our help! Angelman Syndrome (AS) is a very rare genetic disorder caused by a mutation to a single gene involved with regulating neurotransmitters in the brain. While their symptoms are variable, Angels are largely nonverbal, have difficulty walking, are prone to seizures, and have difficulty sleeping. But still, they are the happiest kids in the world.
I've created this page because I'm inspired by the breakthroughs being made by FAST, an organization that funds research aimed at curing AS, and I want to do my part by raising money to help promote FAST's efforts. My husband Russell and I are running the Twin Cities 10 Mile for Lou, and will be dedicating our race to raise awareness for AS. Researchers know exactly what causes AS and FAST scientists have already cured AS in laboratory mice.
Please help me support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated more than you will ever know! The more people that know about FAST, the greater their impact, so please also spread the word by sharing my page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research.
I cannot thank you enough for your generosity. For those of you who personally know the Werners, family is everything! I am happy to go the extra mile today and always for Louis and celebrate the amazing guy he is! Lets show the Werner family (Todd, Karly, Margot, William, and sweet Lou) that they have all the love and support in the world.
Here is a glimpse of what we are so proud to celebrate:
FAST (Foundation for Angelman Syndrome Therapeutics) is an organization of families and professionals dedicated to finding a cure for Angelman syndrome through the funding of an aggressive research agenda, education, and advocacy.
FAST is run by an all-volunteer board who dedicate their time and expertise towards finding a cure for Angelman syndrome. Our goal is to bring practical treatment into current medical practice as quickly as possible.