Emma was diagnosed at age 4 with Angelman Syndrome (AS). She will soon turn 15 yrs old. Wouldn't it be lovely to see her cured of AS for her "Sweet 16" birthday in 2019? Well thanks to the Foundation of Angelman Syndrome Therapeutics this wish may just come true.
With your help sharing this page our goal is to be in clinical trials for "gene therapy" by 2019. Wouldn't that be a Sweet 16th Birthday gift to my gorgeous granddaughter who has lived in silence, battling seizures for the past 14 plus years? Please consider donating to #CureAngelman and help my precious Emma get back the life Angelman Syndrome robbed her of at birth.
I've created this page because I'm inspired by the breakthroughs being made by FAST, and I want to do my part by raising money to fund clinical trials for Angelmansyndrome (AS). FAST researchers know exactly what causes AS and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome. Your donation to my page helps fund all of them. Please help me support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater their impact, so please also spread the word by sharing my page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity.
Together WE CAN #CureAngelman