2-2-2018 Today Arianna Turns 14! In honor of her birthday we are launching the new CAN page... this diagnosis of Angelman Syndrome 12 years ago was devastating. It has changed our lives for the better and for the good. But it is hard, it is exhausting, and it is an everyday struggle. We just want her to be able to have a healthier physical, mental, and emotional life. Eliminating just one of the things, that Angelman makes her struggle with, will give her the best gift ever. Being able to walk without difficulty or handle transitions without anxiety, or sleep better, or even speak those words she has inside her head. The research that is there is going to help make this a reality. With this research we will become "closer to fine".
I've created this page because I'm inspired by the breakthroughs being made by FAST, and I want to do my part by raising money to fund clinical trials for Angelman syndrome (AS). FAST researchers know exactly what causes AS and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome. Your donation to my page helps fund all of them. Please help me support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater their impact, so please also spread the word by sharing my page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity.