Just over one year ago, our perfect little princess was diagnosed with Angelman Syndrome. AS is a rare neuro- genetic disorder that causes many debilitating challenges. Doctors told Matt and I that Gianna will never talk, might never walk, have intellectual disability and epilepsy. As anyone can imagine, we were completely shocked and heartbroken.
We felt completely helpless until we met several scientist that have devoted their careers to curing Angelman Syndrome. Their hard work, persistence and determination has paid off because Angelman Syndrome HAS BEEN CURED using 6 different strategies. Despite the incredible scientific breakthroughs, AS is so rare there isn't sufficient funds or awareness to support the exciting developments. The FDA approved clinical trials to start next year. This is a very exciting time for our kids. We have been told that with 20 million dollars a cure will be achievable within 5 years.
Matt and I are on a mission to spread awareness about Angelman Syndrome and to raise funds to help our baby girl and almost half a million people around the world have the life they deserve.
Please make a donation today and help us spread awareness about AS! We are so close to curing our kids and your involvement will help us eradicate a severe neurological disorder.