June 26, 2018 was Diagnosis Day. On that day we learned that Titus has Angelman Syndrome, a rare and random (not inherited) mutation of one gene in his chromosome makeup. “Angels” have seizures, cognitive impairment, developmental delays, motor control disorders, and are non-verbal or have minimal speech. On Diagnosis Day, our hearts broke for the challenges he faces, the struggles he endures, the thought that he may never crawl or walk, that we may never hear him say “Mama” or “Dada”. As hard as this diagnosis was, we are grateful to God because a cure is in the making and it is no longer “if”, but “when”. Be a part of this legendary cure!
FAST researchers know exactly what causes Angelman Syndrome (AS) and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome. Your donation to my page helps fund all of them. Please help me support this critical research by clicking the “Give Now” button and donating whatever you can (no amount is too small). This research could also benefit those with Alzheimer’s, Epilepsy, and Autism. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity!