My daughter Chloe was diagnosed with Angelman Syndrome March 24th, 2016. Angelman Syndrome (AS) is a severe neurological disorder affecting approximately 1 in 15,000 live births. AS is characterized by profound developmental delays, problems with balance and motor coordination, loss of functional speech, epilepsy and behavioral uniqueness.
Our Children spend their days in therapies; physical, occupational and speech and they don't complain, they embody love and brighten the lives of everyone they come into contact with.
They are Angels and it is our job as parents to do everything in our power to help make their lives easier, whether by making sure that the food they eat is the right thing for their bodies and minds, making sure that they get time to relax and be children so that life is not always a series of therapies.
FAST is giving us “Hope”, we can now hope that they will live independently, hope that we will here our babies say mama and dada, hope that they can tell us when they are sick or hungry or thirsty.
Because without that hope and help from the many people in our lives and the scientist that are working to cure this disease life would be unimaginable.
I've created this page because I'm inspired by the breakthroughs being made by FAST, and I want to do my part by raising money to fund clinical trials for Angelman syndrome (AS). FAST researchers know exactly what causes AS and have already cured it in the laboratory. Today, five therapy strategies are in development to treat Angelman syndrome.
Your donation to my page helps fund all of them. Please help me support this critical research by clicking the “Give Now” button and donating whatever you can. Every single dollar counts and is appreciated! The more people that know about FAST, the greater their impact, so please also spread the word by sharing my page with your contacts. Since AS is a rare disorder, we truly rely on the support of friends and family members to fund this groundbreaking research. Thank you in advance for your generosity.